This awareness month, Army of Us has been all about Revolution. We’ve shared awareness images with our take on famous propaganda posters, created profile flags and made timeline posters. But what do we mean when we talk about revolution in the context of all of us living with Rett syndrome? A revolution often happens when people demand change, when there is a tipping point and the status quo is no longer acceptable to the majority. Rett syndrome is obviously a big part of what we face and how we feel, so it is easy to say that our revolution is

 Your child is not “retarded”. This is very close to my heart, every day I read comments from families about the intelligence (or lack thereof) of people living with Rett syndrome. I feel I need to rectify what is being said. I know it’s not their fault, families (and friends) get their information from people & organisations who represent Rett syndrome. They are the root of all information that is distributed about the disorder, which is why I feel it is so vital for them to get the proper message out. I hate using the word “retarded”, I am VERY