Hope

Today is a special day for me, for a number of reasons, today is Carys’ birthday, she turns 5 and I’ll be making her a special birthday card too. Why else is it special? Well when my niece, Jessica, came to stay with me a few years ago, and I prom...

Today is a special day for me, for a number of reasons, today is Carys’ birthday, she turns 5 and I’ll be making her a special birthday card too.

Why else is it special? Well when my niece, Jessica, came to stay with me a few years ago, and I promised to take her to Thorpe Park (an adventure theme park in London). I take the responsibility of being a fun uncle very seriously 😉 so I was determined to take her on all the rides and do everything with her. What I didn’t foresee was being too fat to fit into the seats of some of the rides. It came as a bit of shock, until that point it hadn’t dawned on me how truly overweight I was. I was embarrassed into action, Carys and Rett Syndrome became the focus of that action.

Just over a year ago now I wrote a story on facebook about how Carys saved my life, how she changed the way I perceive things, by showing me the simple things we take for granted. I mean really simple things, like breathing, eating and sitting still, I don’t mean the big things that we talk about with Rett Syndrome all the time.

There are so many symptoms that sometimes it seems like the simple ones get overlooked or relegated to the bench when we talk about Rett Syndrome and explain it to people. I look at Rett Syndrome completely different now to how I looked at it in the beginning, with a little bit of time and more exposure, I see the value of patience and the importance of understanding. That is for another discussion though.

Well on Monday I went back to Thorpe Park, with one of my other God Children, Caitlyn. What I loved about the day was going to the “size” seat at the rides, for those of you that don’t know what that is, it’s a seat that sits outside the entrance to the ride where you get to see if you’re too big for it. I fitted quite easily into them, in fact I was just sitting in them all the time because I could.

When I got home on Monday night, I was reading about some the things I hoped to accomplish in that original post. In the post I was talking about how I hoped to do my first Half-Marathon and how the furtherest I’d run was 6.3 miles. Well, I’ve done a few now and in the next 12 months I will be hoping to do at least 4(one completed already) along with a few 10k runs and Virgin Active London Tri-athlon.

I started off with nothing more than hope.

“Hope is like the sun, which, as we journey towards it, casts the shadow of our burden behind us. …Hope sweetens the memory of experiences well loved. It tempers our troubles to our growth and our strength. It befriends us in the dark hours, excites us in bright ones. It lends promise to the future and purpose to the past. It turns discouragement to determination.

Samuel Smiles

 

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