Resources

Use our resources page to get in touch with an organization with people dedicated to help and support you. Use our online tools to help with your awareness and fundraising.

Family Support

The following organisations have dedicated support resources and may be able to help you with issues specific to your location. Please contact us to add your organisation to this page.

Girl Power 2 Cure, 1881 S. 14th Street #1
Amelia Island, FL 32034, USA

Rettsyndrome.org, 4600 Devitt Drive
Cincinnati, OH 45246, USA

Rett UK, Langham House West,
Mill Street, Luton, LU1 2NA, United Kingdom

Profilomatic Profile Picture Maker

Use profilomatic to create a custom social media profile picture frame. Click on an image below to start.

Rett syndrome isn't what makes her rare — Rare

Rett syndrome steals so many things but never the joy her happiness brings. — Joy

I think a hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles. — Fight like her

Hello. I've got something to say. — Hello. I've got something to say

I Love Someone With Theme — I love someone with

Love Someone New Theme — I love someone with

Fact Cards

Use our fact cards to help deliver simple, concise information on social media. Click on an image to open the photo album (opens our Facebook page)

Hope Cards

Use our hope cards to deliver simple messages of hope, these can be paired with a fact card. Click on an image to open the photo album (opens our Facebook page)

Popcaps

We have a large number of custom named pop caps to use as profile pictures or just to share on your timeline.
Click on an image to open the photo album (opens our Facebook page)

I fight Rett syndrome — Awareness month (2016)