Resources

Use our resources page to get in touch with an organization with people dedicated to help and support you. Use our online tools to help with your awareness and fundraising.

Family Support

The following organisations have dedicated support resources and may be able to help you with issues specific to your location. Please contact us to add your organisation to this page.

Girl Power 2 Cure
Girl Power 2 Cure, 1881 S. 14th Street #1
Amelia Island, FL 32034, USA
Rettsyndrome.org
Rettsyndrome.org, 4600 Devitt Drive
Cincinnati, OH 45246, USA
Rett UK
Rett UK, Langham House West,
Mill Street, Luton, LU1 2NA, United Kingdom

Profilomatic Profile Picture Maker

Use profilomatic to create a custom social media profile picture frame. Click on an image below to start.

Real love doesn't need words
Real love doesn't need words
Rett syndrome isn't what makes her rare
Rare
I choose to believe
I choose to believe
Rett syndrome steals so many things but never the joy her happiness brings.
Joy
I think a hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.
Fight like her
Hello. I've got something to say.
Hello. I've got something to say
Army of Hope
Army of Hope
I Define Me
I define me
I Love Someone With Theme
I love someone with
Love Someone New Theme
I love someone with
Together Stronger
To get her stronger

Fact Cards

Use our fact cards to help deliver simple, concise information on social media. Click on an image to open the photo album (opens our Facebook page)

Fact Card English
English
Fact Card French
French
Fact Card German
German
Fact Card Polish
Polish
Fact Card Portuguese
Portuguese
Fact Card Spanish
Spanish

Hope Cards

Use our hope cards to deliver simple messages of hope, these can be paired with a fact card. Click on an image to open the photo album (opens our Facebook page)

Hope Card English
English
Hope Card French
French
Hope Card German
German
Hope Card Polish
Polish
Hope Card Portuguese
Portuguese
Hope Card Spanish
Spanish

Popcaps

We have a large number of custom named pop caps to use as profile pictures or just to share on your timeline.
Click on an image to open the photo album (opens our Facebook page)

I fight Rett syndrome
Awareness month (2016)
Army of hope
Army of Hope (2015)
Army of hope
Pop caps for change (2014)