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Tag: genetic counsellors

How to tell a family their daughter has a Rett Syndrome diagnosis: A message to all doctors and genetic counselors

It is Down Syndrome Awareness month and I read a brilliant post about “How to Deliver A Down Syndrome Diagnosis the right way”  – which, by the way, I encourage everyone to read. However, this got me thinking … maybe a letter also needs to be written on “How to tell a family that their daughter […]

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